When I think about the path that led to my daughter’s diagnosis of high-functioning autism in July when almost 2 1/2, I am amazed at how random that path was. My husband happened to speak with a coworker who was getting some assistance for their child through Child Find. We wondered about Maya and had her evaluated with the organization when Maya was about 1 1/2.
The results were primarily that there was a speech delay. She then began to see a speech therapist and occupational therapist. This service will end when she turns 3 in February. Soon she will have an evaluation to see if she qualifies for services through the district once she is 3.
Earlier in the year, concerns had been brought up by a therapist regarding autism. The ball to have her evaluated for the disorder started rolling and was blocked repeatedly by her insurance. After much pushing and coordination between Child Find and myself with Maya’s insurance, she was given a referral to be evaluated.
I filled out a mountain of paperwork and waited for her evaluation on June 24. We were lucky to not have had to wait too long, as many people wait a while on a long wait list. As the evaluation approached, we heard increasingly that she did not seem to have the disorder. I was just glad to be able to rule it out. This of course made the actual diagnosis of her having high-functioning autism even more mind-boggling. Every day, we look at her wondering if there was a mistake – at times it seems it was, and at others it achingly does not.
The material and books to read and learn about autism are immense and daunting. How does a parent even find the time when we are overwhelmed and exhausted from the extra effort involved in raising a child with autism? What little I have managed to read so far stands out with the message to look at my daughter specifically as the wonderful human being I know her to be and to learn directly from her about her and not get worried or weighed down by a label.
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